FAiTh has aim to initiate Iron Chelation Camp for our thalassemia fellows of Karachi where they will visit thalassemia center, get their required desferal injection dose via IV in supervision of hematologist, qualified doctors & staff. So before starting the camp we organized ferritin test activity with the help of Saylani Thalassemia Center on 28th February 2019 in Karachi where more than 28 fellows got their ferritin test done in a very reasonable rates.
In next step they will have further investigation done soon inshaAllah and in the final step fellows will be enrolled for the camp.
A blood donation camp for thalassemia patients was organized by Saylani Blood Bank & Thalassemia Center at Jinnah Medical & Dental College Karachi on 14th February 2019, where a lot of medical students & general public voluntarily donated blood for thalassemia patients.
Later in the evening an event was organized for thalassemia patients at Arts Council Karachi by Dr Haseeb Child Care Foundation.
FAiTh was invited by Saylani Blood Bank & Thalassemia Center for both the events, thank you Dr Ghulam Sarwar for the invitation
FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at Saylani Thalassemia Center on Thursday 28th January 2019 We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & thalassemia screening.
Saylani Welfare International Trust is a Pakistani charity focusing primarily on feeding the homeless. It was established in May 1999 and is headquartered at Bahdurabad, Karachi, Pakistan. They are working on more than 50 projects related to life. They started their thalassemia center 3 years ago, with a full functional latest blood banking system, currently they have 250 patients registered.
Gifts were distributed among the patients by FAiTh. We are thankful to Saylani Thalassemia Center for giving us chance to interact with patients & parents, for the arrangements & support
CEO Saylani Blood Bank & Thalassemia Center invited team FAiTh to visit their blood bank & thalassemia center. We are grateful to meet Dr Ghulam Sarwar & their team. They have state of the art blood banking system with 30 bedded thalassemia center. They have 250 patients registered at the moment who receive timely transfusions & proper iron chelation medicines.
FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at SMT Thalasemia Center Haripur on 13th January 2019
We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & iron chelation medicines.
Haripur is the main city of the Haripur District in Hazara, Khyber Pukhtunkhwa in Pakistan, we traveled from Kohat to Rawalpindi to reach Haripur.
SMT Thalassemia Center established in 2010 have approx. 170 registered patients, 120 patients visits regularly for transfusions, they are trying their best to provide safe blood transfusions to their patients with self-help & limited resources. 10 patients are sponsored for iron chelation medicines by private donors.
It is the only center working in Haripur with proper blood banking system catering patients from Haripur, Abbottabad, Haveliyan, Swat, Hasan Abdal etc.
FAiTh have plans to help improve their services after identifying the weaknesses & to sponsor patients for iron chelation medicines, since due to center’s limited resources & no support from Government patients are unable to take iron chelation medicines hence have high ferritin levels.
In the end attendees promised us to follow all the guidelines we shared with them. Gifts were distributed among the patients by FAiTh
We are thankful to SMT Thalassemia Center Haripur for giving us chance to interact with patients & parents, for the arrangements & support
We are also thankful to Haripur Press Club & all the media of Haripur for their hospitality, support & coverage.
FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at Frontier Foundation Kohat on Friday 11th January 2019 We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & iron chelation medicines.
Kohat is a city in the Khyber Pakhtunkhwa province of Pakistan which serves as the capital of the Kohat District, we traveled 1311 km / 34 hours from Karachi to reach Kohat. Frontier Foundation established in 2004 have approx. 700 registered patients, they are trying their best to provide safe blood transfusions to their patients with self-help & limited resources.
FAiTh have plans to help improve their blood banking system after identifying the weaknesses & to sponsor patients for iron chelation medicines, since due to center’s limited resources & no support from Government patients are unable to take iron chelation medicines hence have high ferritin levels.
In the end attendees promised us to follow all the guidelines we shared with them. Gifts were distributed among the patients by FAiTh
We are thankful to Frontier Foundation Kohat for giving us chance to interact with patients & parents, for the arrangements & support
FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at United Foundation Kohat on Thursday 10th January 2019
We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & iron chelation medicines.
Kohat is a city in the Khyber Pakhtunkhwa province of Pakistan which serves as the capital of the Kohat District, we traveled 1311 km / 34 hours from Karachi to reach Kohat.
United Foundation established in 2011 have approx. 400 registered patients, they are trying their best to provide safe blood transfusions to their patients with self-help & limited recourses. They are also providing blood & blood components to different hospitals in the city. FAiTh have plans to help improve their blood banking system after identifying the weaknesses & to sponsor patients for iron chelation medicines, since due to center’s limited resources & no support from Government patients are unable to take iron chelation medicines hence have high ferritin levels.
In the end attendees promised us to follow all the guidelines we shared with them.
Gifts were distributed among the patients by FAiTh. We are thankful to United Foundation Kohat for giving us chance to interact with patients & parents, for the arrangements & support
An Interactive Session For Thalassemia Patients & Parents was organized by FAiTh Patients & Parents Association on 13th December 2018 in Karachi. Event was conducted by Dr Adil Akhter – Pediatrician, Thalassemia Consultant at Amina Bashir Memorial Trust & Project Manager at The Indus Hospital. The event was attended by thalassemia patients & their parents. The event gave a great chance to our thalassemia fellows to ask questions regarding their treatment openly to doctor. We are really thankful to Dr Adil Akhter for his time, support and knowledge.
Alhamdulillah we had a successful thalassemia awareness & interactive session in Vehari Punjab on 4th December 2018. It was attended by general public, media people, civil society, patients & their parents. Our team traveled for 19 hours to reach Vehari. There are more than 400 patients in Vehari, living with low hemoglobin like 4-5 gram, 5000 ferritin, there is a District Headquarter Hospital but they transfuse whole blood to all the patients, they don’t have any proper doctor for guidance, proper blood banking system and machines to make components. Those who can afford, they travel to Multan / Bahawalpur for better treatment. Those who can’t afford have no other option but to take whole blood transfusions and nothing for iron chelation and they hardly live up to 14-15 years old.
We are thankful to Shafique Sahb, Fareed Wasli, Mahfooz Hashmi, all the donors, supporters, press, media, lawyers community, patients & parents for making it a successful event & acknowledging FAiTh efforts.
Special thanks to Shafique Sahb, Vehari Cooridinator Fareed Bhai & Mahfooz Bhai for taking lead & initiating FAiTh office from Vehari for the thalassemia awareness & thalassemics betterment.
FAiTh Karachi team celebrated the opening of FAiTh Karachi office on 27th November 2018
Thanks to Raza Ahmed, Shoaib, Mehwish, Afifa, Kulsoom and our guest from Khairpur Areeba Gulzar.
