FAiTh Patients & Parents Association held it’s first Interactive Session & Clinic On Diabetes and Endocrinology on 16th May 2019 at FAiTh Head Office Karachi.

Event was conducted by Dr Ayesha Sheikh Consultant Endocrinologist The Aga Khan University Hospital.

The session was attended by thalassemia fellows and their parents from different thalassemia centers.

13 fellows has been thoroughly examined for endocrine & diabetes issues and prescribed treatment. More fellows will be examined in next session which will be held soon.

We are really thankful to Dr Ayesha Sheikh for her time, support, knowledge & guidance.

FAiTh Team Vehari celebrated Thalassemia Day on 14th May 2019 at Thalassemia Ward DHQ Vehari with thalassemia fellows.

Team cut cake in celebration with fellows, distributed gifts among them with MS DHQ Vehari, Thalassemia Ward Incharge Dr Quratulain & Children Specialist Dr Hafeez.

Congratulations to the entire team for the great event.

FAiTh General Secretary Muhammad Hammad travelled to Vehari on 26th April 2019 for meeting volunteers of Team FAiTh Vehari.

On 27th April he had a fruitful meeting with all the team, distributed membership cards & panaflex among them. Briefed them regarding thalassemia cause and how they can contribute in this noble cause.

On 28th April he visited DHQ Hospital Vehari along with the team. Visited DHQ thalassemia ward & blood bank.

Next day he met DHQ thalassemia ward incharge Dr Quratulain, discussed issues regarding blood bank, iron chelation medicine and FAiTh collaboration with DHQ thalassemia ward. We are thankful to Dr Quratulain for her valuable time.

Special thanks to Chaudhry Muhammad Shafiq for his guidance, time, hospitality.

We are also thankful to Team FAiTh Vehari members Ismaeel, Azeem, Asif, Syed Anas, Hamza & others

Team FAiTh participated in Walk For Cause / Walk For Thalassemia Free Pakistan & Tribute To Pak Armed Forces organized by Help International Welfare Trust on 23rd March 2019 in Karachi.

We all should work for thalassemia free Pakistan, we all should save our next generations from this deadly disease.

After walk team FAiTh had lunch together, it was indeed a very fruitful & happy day mashaAllah.

Thank you Help International Welfare Trust for the appreciation & making FAiTh a part of this great cause.

FAiTh arranged one day chelation camp in collaboration with Saylani Thalassemia Center on 13th March 2019. 15+ fellows got detailed hematologist consultation. Got their Hepatitis C, Hepatitis B, HIV, Calcium, Ferritin & Vitamin D tested. 12 fellows received iron chelation as per their required dose for 12 hours. And management also gave another 12 hours dose as take home medicine.

FAiTh has aim to initiate Iron Chelation Camp for our thalassemia fellows of Karachi where they will visit thalassemia center, get their required desferal injection dose via IV in supervision of hematologist, qualified doctors & staff. So before starting the camp we organized ferritin test activity with the help of Saylani Thalassemia Center on 28th February 2019 in Karachi where more than 28 fellows got their ferritin test done in a very reasonable rates.

In next step they will have further investigation done soon inshaAllah and in the final step fellows will be enrolled for the camp.

A blood donation camp for thalassemia patients was organized by Saylani Blood Bank & Thalassemia Center at Jinnah Medical & Dental College Karachi on 14th February 2019, where a lot of medical students & general public voluntarily donated blood for thalassemia patients.

Later in the evening an event was organized for thalassemia patients at Arts Council Karachi by Dr Haseeb Child Care Foundation.

FAiTh was invited by Saylani Blood Bank & Thalassemia Center for both the events, thank you Dr Ghulam Sarwar for the invitation

FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at Saylani Thalassemia Center on Thursday 28th January 2019 We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & thalassemia screening.

Saylani Welfare International Trust is a Pakistani charity focusing primarily on feeding the homeless. It was established in May 1999 and is headquartered at Bahdurabad, Karachi, Pakistan. They are working on more than 50 projects related to life. They started their thalassemia center 3 years ago, with a full functional latest blood banking system, currently they have 250 patients registered.

Gifts were distributed among the patients by FAiTh. We are thankful to Saylani Thalassemia Center for giving us chance to interact with patients & parents, for the arrangements & support

CEO Saylani Blood Bank & Thalassemia Center invited team FAiTh to visit their blood bank & thalassemia center. We are grateful to meet Dr Ghulam Sarwar & their team. They have state of the art blood banking system with 30 bedded thalassemia center. They have 250 patients registered at the moment who receive timely transfusions & proper iron chelation medicines.

FAiTh – Fight Against Thalassemia – A Patients & Parents Association conducted a Patients & Parents Session at SMT Thalasemia Center Haripur on 13th January 2019

We briefed them about how can they take better care of themselves, how they can maintain their hemoglobin and ferritin, about prevention, about FAiTh Patient Support Group, how can they spread awareness & how can they help themselves & thalassemia center regarding blood donations & iron chelation medicines.

Haripur is the main city of the Haripur District in Hazara, Khyber Pukhtunkhwa in Pakistan, we traveled from Kohat to Rawalpindi to reach Haripur.

SMT Thalassemia Center established in 2010 have approx. 170 registered patients, 120 patients visits regularly for transfusions, they are trying their best to provide safe blood transfusions to their patients with self-help & limited resources. 10 patients are sponsored for iron chelation medicines by private donors.

It is the only center working in Haripur with proper blood banking system catering patients from Haripur, Abbottabad, Haveliyan, Swat, Hasan Abdal etc.

FAiTh have plans to help improve their services after identifying the weaknesses & to sponsor patients for iron chelation medicines, since due to center’s limited resources & no support from Government patients are unable to take iron chelation medicines hence have high ferritin levels.

In the end attendees promised us to follow all the guidelines we shared with them. Gifts were distributed among the patients by FAiTh

We are thankful to SMT Thalassemia Center Haripur for giving us chance to interact with patients & parents, for the arrangements & support

We are also thankful to Haripur Press Club & all the media of Haripur for their hospitality, support & coverage.